Wednesday, August 7, 2013

Lymphedema Products I Swear By

Hi all,

I wanted to share a fantastic product I've found to help reduce fibrosis which is the hardening of the skin and tissue, as I understand it. These little squares of sponge are amazing and have helped me to find my inner ankle bone and knee cap. I use it for short stretch bandage wrapping. Also, if you're not familiar with Bandages Plus, they are a wonderful company to order from. They have a lot of products with reasonable prices and I'v never had any issues with my orders.

http://www.bandagesplus.com/prd/152/780/Chocolate-Bars.html

Another product I use every day is this lotion, Lymphoderm Body Lotion. It helps maintain PH and reduces chances of infection. I use it on my Lymphedema leg and foot daily. It also has a cool feeling on the skin which is wonderful on our hot and swollen limbs.

http://www.bandagesplus.com/prd/40/610/Lymphoderm-Body-Lotion.html


Feel free to share any other products you've found that you can't live without!

8 comments:

Anonymous said...

Thank you for your link. I have been in need of new supplies and this one is just the answer.

Anonymous said...

I'm so happy to have found your blog:) I was diagnosed with secondary lymphadema of the right leg last year. I'm 34 and its been a huge struggle. I miss my old clothes,workouts, etc. I'm staying positive and learning to cope:) I too ran my first 5k this summer and I'm signed up for one in sept and oct. I want to keep working out and not let the swelling stop me:) thanks for sharing your stories!! I can relate 100%:)

Phil Burdine said...

It's funny your story and mine are very similar. My awful experience was at the University of Chicago though.

I'd like to talk to you more if you're up for it since we have similar stories.

Lindsay said...

Hi Phil - sure I'd love to chat more about Lymphedema. You can email me at lnicho7@gmail.com. It is shocking how many of us with LE have these horror stories. When doctors don't take it seriously they risk patients having more medical issues years down the road, it's just common sense to me but I guess that's not a requirement in the medical community!

VIRTIOUSWOMAN86 said...

Hi i am at work just researching how to get over ones opinon of my lymphedema. Its very frustrating in the summer time when i was to wear cute skirts and sandals but i dislike when people look my legs like i'm some freak. I am definitely encouraged by the stories i am reading on here. I have been having lymphedema sincd i was 13 and was diagnosed when i was 20. I am now 27 years old and pretty fit(now) but i'm so insecure about my lymphedema i have in both legs but is very noticable in myleft leg!

Stacy said...

Hi Lindsay. We too have very similar stories! I'm 32 living in Chicago and happy for some warm weather finally but dreading the swelling and clothing changes that summer brings (break out the maxi dresses!) I wanted to know if you have a good therapist in Chicago that you would recommend. I like to ignore this condition (not good I know), but really need to start managing it better.

Stacy said...

Sorry. Should clarify - lymphedema therapist. For decongestive therapy, bandaging, etc.

Jennifer said...

I just wanted to share . . . I was diagnosed five years ago, when I was 45, with primary lymphedema in my left leg. I started running when I was 42 and completed 3 marathons before the onset of lymphedema. I LOVE running; my lymphedema doc told me I shouldn't run; but I continue to run 15-20 miles per week. I can't say whether it helps or hurts the lymphedema, but running definitely makes me feel better physically and emotionally. I run with a thigh-high 20-30 compression hose on my left leg. People stare sometimes, but I really don't care. I think people are mostly curious. -- Jennifer