My newest obsession: spinning

I know it has been some time since I last wrote a blog entry. My boyfriend of nearly five years proposed around my birthday last May 2012 and we were married March 16, 2013. It has been a busy year with a lot of changes like a new job and planning the wedding so time has slipped away. My condition has remained about the same but I do notice that my leg is slightly larger than it used to be which probably means that I need to revisit physical therapy. One big change that I have made within the last several months is my obsession with spinning. One of the women that I’ve met over the years through Lymphedema sites told me how she enjoyed cycling and was improving her Lymphedema. I live in Chicago and am also horrendously klutzy so being on a bicycle in the streets of Chicago sounded like a death sentence. I opted for the safer gym version of spinning. Running had and still is, too painful for me. Many women with Lymphedema can jog and enjoy it so don't hesitate to give it a shot but unfortunately, I have to quit running. My leg would get very swollen and painful after running and I was having more hip pain than with just walking. That's when I decided to give spinning a shot. I started going to one particular instructor who is gifted in instructing a spinning class and plays great music like deadmau5. The workout is much more challenging than my typical elliptical routine. My body quickly got back into shape and in better shape going to spinning 3 times a week than doing the elliptical for 5. The classes are intense and past paced so you don’t feel like you’ve been working out for a long time. I also have noticed that my hip pain is nothing like it used to be. I still have flare ups but nothing like the pain I had when I was jogging. The various positions of spinning are likely what’s ideal for our legs. In spinning positions 2 and 3, you are raised up from the seat which allows for more lymph circulation than in the seated position. Another wonderful aspect about spinning classes is that you control the resistance and speed. If you start feeling pain or like your Lymphedema leg can’t keep up, you can keep the resistance low and go at a slower pace. Like always, please remember that while you are strong, you also have Lymphedema. There are good days and bad. Sometimes will be more challenging than others. Some spin classes I feel like I don’t have Lymphedema and others, my leg finds too exhausting. Just be careful with any exercise and adjust to what your leg is telling you.

Bye Bye Running

My last post was very positive about how running was really improving my leg. I was incredibly stressed out due to work and needed some positive outlet to deal with it. I therefore started to go to the gym every morning before work. I started to push myself a lot which is great but I began to compete with other runners at the gym and many times pushed myself too far. My leg was getting more swollen and pretty painful. I definitely did not want to stop going to the gym because my entire outlook on life changed and I felt much happier during the day and better able to deal with any stressor in my professional or personal life. So I ended up going back to the elliptical and/or walking. I started knocking out 5 miles almost every morning with that combo and felt much, much less pain. I do sometimes wonder if the benefits aren't as dramatic as running so I need to be better about adding in weights to my workouts. I just find it so boring! I also need to try yoga and other modes of exercise. I just find cardio so enjoyable like I am in my own little world. Couple of points I would like to make with this post. 1) Competition is great at the gym because it pushes us but unfortunately, we are not like most people at the gym and keeping up with a person who does not have Lymphedema may just not be good for us! Compete to a level of pushing yourself but always take notice of how your leg reacts and modify your workouts accordingly. If it's painful, slow down. 2) Each person has a workout that is appropriate for them. If you're not bothered by the running then continue! If you're in pain or your're swelling is worsening, find a minimal impact exercise. 3)Remind me to not be lazy about the weight lifting because I have read that building muscle in our leg is one of the best things to do.

FIVE MILES!

I have been meaning to post this all week but I hit a new milestone with my work outs! This may seem like a tiny feat to some but I did a run/jog combo with minimal walking and made it to 5 miles. Since having Lymphedema, I have been able to do a little over 4 miles but never 5 miles. I wanted to share with my readers (all 5 of you!) that I did it!!! I then worked out again the next day and could only do 3 and had to walk, but hey, I did it once so I am sure I can do it again.

Exercise pays off and the more our limbs get conditioned to it and build muscle, the better we will be at pushing ourselves even further. It is difficult as heck and I know it as I cringe through the pain on the treadmill some days but don't give up, it will pay off!!

And please - be careful and don't over do it. I have been working hard at getting to 5 miles for the past year... yes it took me a year to make it to 5 miles from 4... Gradual is key with Lymphedema and always consult your doctor if it is especially painful.

Pain = Gain, In swelling that is...

Can I just complain about how some weeks this darn leg just kicks me on my butt. I am so exhausted this week I think because the pain in my leg has been so intense. So here's to everyone that still works and deals with a busy week in spite of pain and swelling, I commend you and feel free to complain as well :)

Weak Immune System

I have never really had the best immune system. I remember when I was a kid, I would get strep throat several times a year with high fevers and always sick for longer than normal periods of time, i.e. it took me much longer to get over being sick. Now that I have Lymphedema, I notice flare ups when I am about to get sick and while I am sick and I wonder what the correlation is between having Lymphedema and a weak immune system is, if any. I know we are more susceptible to infections in the effected limb but what about illness? Are we more prone to get sick or less likely to recover quickly from illness? When I search for information on this, I only get hits back on cellulitus and skin infections. Has anyone experienced the same issues or know of any research on this? My mind starts to churn, maybe it's the researcher in me, but I wonder if certain people are more susceptible to getting Lymphedema because of something in their immune system. Or possibly, Lymphedema weakens the immune system after it develops. If the lymphatics are a system then if part of that system isn't functioning properly, wouldn't it decrease the overall functioning and strength of the lymphatic system? I'm not a doctor at all but maybe someone reading my blog will have some answers. I need to see my doctor for a check up so I will pose these questions to him. I will post more information if I find it :)

Resource Info on Lymphedema and Exercise

I found a great resource for info on Lymphedema which talks about how specific and individualized exercise should be for those with Lymphedema. Please be sure to check it out!


http://www.lymphedema-therapy.com/lymphedema-exercise.html

Acceptance

I suppose one thing that I have learned from Lymphedema is that life throws a lot at you and there is not a thing you can do about it. No matter how good you try to be or how hard you work, sometimes things happen that you can't control. No matter how many doctors I saw or how much wrapping and MLD and healthy eating and exercising, I cannot get rid of Lymphedema. It is like so many other things in life. I think one good thing that has come out of Lymphedema is acceptance. Acceptance that there are times that are really awful whether its being diagnosed with a chronic medical condition, a fatal medical condition or simply being hurt by the behavior of others. It's easy to pile on the woe is me's and throw a pity party and I have done it. The type of day where you ask God, why me? And then you're convinced you're the modern day Job. But I think that is life, a lot of disappointments and hardships and a lot of why me's. I just don't think that is all of life and that kind of thinking starts with acceptance. Everyone is entitled to a fantastic pity party... But, big BUT, do it and get it over with and move on to what you can do to make it suck a little bit less. When I realize that I can make choices to make my situation better - it gives me a reason to get up in the morning - it's what keeps me going. Well, that and coffee and sugary treats... Also, helps to have some really great people in your life that love you and are supportive like a great boyfriend, an attentive roomie and parents that listen to you.

I guess that’s my inspirational speech after a horrible day. Should I be one of those motivational speakers or what?!? Lol.