Amy Purdy - Living Beyond Limits
For many of us with Lymphedema, we can only see the borders that the condition has created in our lives but as Amy Purdy noted in her TED talk, we can use those borders to be creative and push our lives into a direction we never thought possible. Amy Purdy is a Gold Medal snowboarder despite having lost her legs at the age of 19. She is truly a role model and proof that we are more than what our condition defines us as.
At the age of 25, I developed severe swelling in my left leg. One year later, after 4 doctors, several hospital visits, tons of money and frustration (to say the least) I was diagnosed with Primary Lymphedema. I am 30 years old and trying to cope with this life long, life altering, luckily non fatal condition.
Tuesday, April 29, 2014
Saturday, March 22, 2014
Limitations are only what you make them to be
The
biggest struggle with having Lymphedema has been the feeling of limitation that
results from the condition. I feel it every day from my energy level to what I
can wear to running on a treadmill. Many days I define myself by these
limitations just out of habit. The problem is that when you focus on what can't
be done, there won't be an attempt to try something more challenging or to try
to instead find success. On the days when I did not bind myself to my
perception of what I could or could not accomplish, I found success and
opportunities. For example, for years I wouldn't try to run because a doctor
told me that I should not. When I tried a little each day to run, I ended up
completing a 5k race. Instead of it making my condition worse, it did not
impact it. The same thing happened when I tried spinning. The result was I was
in better shape, feeling less stress and felt more control in my Lymphedema leg
because I was stronger.
In
the past year, I got married to a wonderful man and went on a honeymoon trip in
a tropical place. I think back to one of my first posts and that was exactly
what I had wanted for my life rather than hiding in my home because of shame
for having this condition. I don’t think anyone can blame us for having
feelings of shame or days where we don’t feel we can accomplish much because of
pain but let them be passing moments so you can experience opportunities that
you didn’t think possible. On this honeymoon trip, I went hiking in a
rainforest with capri workout pants and my stocking showing. I got a few stares
but I wasn’t there for anyone but for my husband and me to experience hiking in
a rainforest.
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